*** I have now turned off commenting as I had a great response. Thanks! The journal for the Royal College of GPs are going to work with me to publish something. Thanks again *** I am trying to educate GPs in to recognising and responding to the signs and symptoms of t1 (alongside other research that I will doing later in the year). I am trying to say that some gps do not routinely finger prick even if a child has classic symptoms... If people would like to help please answer survey below regarding your child's diagnosis if you accessed a GP... choose the 1 answer which best fits. Thanks!
*** I have now turned off commenting as I had a great response...
I’ve chosen the first one, however with my husband being diabetic we had already done a finger prick. But we were still given another finger prick and referred straight to hospital x
I wish all GPs would do this...the outcomes would be much more positive x
I know ☹ x
Same as us, my dad is t1 so we used his meter as my son was drinking a ridiculous amount and it read HI rang gp he called us straight in. Retested still HI checked ketones in urine was ++++ sent to children's ward insulin started with in a few hrs. That was 2 days after his 13th birthday:( x
rosanna186 My daughter was just a week past her 13th too. My husband was quite sad to think he had ‘cursed’ her but actually I see it as such a blessing that we knew what we were looking for. She wasn’t in severe DKA and escape HDU. The receptionist at our GP surgery still needed convinced that we needed her seen immediately - we got the ‘are you a medical expert?’ look. In this case yes.... yes I am!!x
lynne81 Most definitely when you live with someone who has it you do become and expert because it is your life 24/7 365 days a yr. I was surprised with how our Drs dealt with it because they are shockingly bad with everything else.
If the response doesn't fit any of the options I can add others x
Yes plz as we rang 111 I also asked a nurse friend of mine who said it sounded like diabetes or thyroid, so we rang 111 they told us to take her hospital ASAP!!! bg once seen was 40.3 ketones 5.0 x
Thank god because who'd of known what could of happened x
I count it as a blessing ringing 111 as they didn't scare me by telling me but they were firm in saying no go to the hospital ASAP as me not liking to bother ppl was going to wait for doctors on Tuesday not knowning the seriousness x
We brought a urine sample in has thought water investion. High glouse so was sent to hospital by Gp.
My son was already in DKA he was grey, was white as a ghost even though he is mixed race, unable to keep down fluids and craved sugar like crazy, couldnt stop weeing or drinking and was told it was viral sent home...
Given antibiotics and told to only take if got worse... I mean how much worse could you get... next day he was unable to walk. I carried him into a&e?
To many people suffering the same issue im glad youre doing this as when they finger pricked his sugars were 36... ketones were off the scale... i just cant believe we were shrugged off like that twice as well
We was lucky our doctor has type 1 x
Chose first, we dropped off a urine sample for testing as though DD had urine infection but also asked them to check for ketones. Ketones present, called urgently to come in, finger prick test and straight referral to local hospital. Couldn't have asked for more. It was the nurse though, never seen the GP re DDs diabetes.
Yes this seems to be the norm.... nurses seem much more willing to finger prick x
tracy10265 She was surprised I'd asked for ketones to be tested but I was aware of the symptoms. I'm very aware we're lucky with our nurses at our GPs. Second time they've saved my DDs life. 1st time she was 10months had RSV bronchiolitis and ended up in PICU. They recognised how bad her breathing was immediately put an oxygen mask on her & called ambulance.
Got an emergency GP appointment, described the symptoms so GP did a finger prick & sent us straight to children’s ward.
Excellent. That is exactly how it should be x
Exactly the same story for us. It was an emergency Saturday appointment booked by 111. So SO glad we didn’t wait until Monday
I chose the last one however they did do a finger prick and his bloods came back 14.3 and all they said was he must of had a big breakfast and I didn’t know any different then and I actually trusted the doctor it was another 4 months until he got diagnosed and that was only because I demanded they done something about him being poorly all the time and had to arrange a blood tests to be done myself with the hospital... got his bloods took at 10 am by 4pm he was admitted to hospital bloods 39 x
Not dissimilar to our story Amanda. Ours was over 3 months of going backwards and forwards to the doctors before they requested a blood test......and even that was after I told them his wee was sticky!
I had my ds back and forward to doctors for about a year as he was poorly every other week I told them he could be type 1 as his auntie on his dads side is type 1 that’s when they done the finger prick I didn’t know at the time his bloods where 14 the nurse just said oh they are a little high did he have a big breakfast it should of been picked up then x in the end I honestly though he had depression or something as he just wasn’t interested in anything x when I look back at pictures he was so thin and so ill x when I think at how serious it could of turned out... doctors do need to be doing more checks for diabetes and following up on them x
The three months was when the significant weight loss and lethargy had started (put down to viral). In the 6 months or so leading up to that we had been called into school to discuss his "mood" swings and
He had been complaining of blurry vision. He was prescribed glasses by the optician which funnily enough he has never worn again since diagnosis!
My daughter was seen 3days before diagnosis and was told she had a water infection, when seen again for a second time the following week she was already in DKA and was in and out of consciousness rushed straight in to HDU.
GP surgery refused to see him as I'd just moved to the area and they wouldn't see him as a temp patient
Walk in clinic wouldn't see him as I couldn't say exactly what was wrong with him.
Both were only receptionists. I told them both I think he has diabetes from googling. He looked like this.....
I took my daughter in to gp due to eating and drinking loads but loosing 2 stone over 6 weeks and always being tired they sent me away saying to come back in 2 weeks I called 5 days later managed to get a appointment specifically asked they check for T1 had a argument with the nurse as she said she doesn’t look diabetic said I wasn’t leaving until they’d checked her wee, so reluctantly she did after telling me I was wasting everyone’s time, to find keytones we were then rushed upto gp and had a immediate referral to local children’s assessment unit, when we got there we were told if I had left it another week to go back to gp I’d never of made that call we would of lost her before, her sugars & keytones were so high they were off the meters limit
I chose first one but I thort my son might b as my father in law is diabetic and Iv always been looking out xx
Ive deleted one option as it was similar to another...the one where it just said finger prick was offered...this fits with the finger prick/referral option x
We presented with classic symptoms and referred for blood tests but no urgency in telling w to get the tests. so I've picked reffered to other pro
Yes I was asked to go back the week after for bloods..... I went straight to a and e who admitted us to HDU x
My sons only symptom was drinking a lot but as my dad has T1 we had an idea what it might be. So I took a urine sample to the docs, she tested it and sent him straight to hospital. We were lucky he wasn’t really poorly x
I diagnosed my second son, as already have one type 1 son. But first one was also 1. They were surprisingly "on the ball". X
If it wasn't for our gp doing finger prick as soon as we walked in his room my daughter wouldn't be here she was DKA. We'll be forever thankful for his quick thinking. Now if my other 2 are ill I ask 1st & foremost to finger prick
I diagnosed my son as I’m type 1 and took him to the GP, told them he was diabetic after doing a BM at home- which the GP then rechecked and sent us straight to hospital.
Why the angry face Tracy?
We were fobbed of for over 4 weeks, with the classic ‘viral infection’ as my daughter was only 1 they thought too young, as it isn’t ‘common’ in under 5’s (apparently) x
I rang 111 where we were told to go straight to hospital x at hospital bg was 40.3 ketones 5.0 x
My dr ignored the fact I brought in a ketone stick on the highest colour (his dad is type 1 so we already had them) he wanted him to go for a blood test at some point. It’s only because I said will you please test his urine and he said yeh leave it at reception. Which we did and when we got home we got a phone call to go to a&e. Not a happy mummy neither was the dsn when she found out.
Misdiagnosed as a virus twice at GP’s surgery. Urine dip done after I absolutely insisted on the third visit to GP. Sent to hospital same day.
It was 15yrs ago but still really upsets me, I was made to feel like a neurotic ridiculous mother but made him test and off we went to hospital, so number 1 I suppose ?
When I went and told them the symptoms and her dad was t1 they didn't finger prick her but did send us straight to the children's ward to be tested
I did tick number one, although my son was not finger pricked. I rang the doctors, they told me to come straight down, his wee was dipped and we were sent straight to hospital and that he suspected diabetes. They took blood etc at the hospital.
I had to demand a urine sample, they were going to send us home as daughter looked so well in herself. They tested urine, followed by finger test and sent us straight to hospital.
'failed to test when presented with classic symptoms and we were told to wait three weeks to see a nutritionist, few days later failed to diagnose DKA.
Happens all to often x
It really does, I'm still hounding the surgery to accept free training from the diabetic team but they have refused for the last 12 months. She had two nurses appointments at the end of the last month and both made glaringly obvious mistakes when referencing T1 and her care, the doctor doing her annual medication review literally asked if we were happy with her medication and that was the end of the appointment, literally under a minute ? it's a joke.
GP suspected T1 in my then 2 year old. However he still sent us home and booked us for bloods the next morning, we didn’t make it home and they urgently called us back! Knowing what I know now I wouldn’t have taken him home without a urine test or BM xx
My dd was DKA and GP did a urine test and we were then sent straight over to the hospital. x
Last August my dd became realy poorly and was like that for 4 weeks she was eventually referred to hospital to see paediatrics as was constantly ill..... They did every test imaginable she went from 7 stone 4 to bang on 4 stone..... Not once did they test for diabetes.... On the 18th of April this year we went back again as we have been doing every 4 weeks and I aired my concerns about her weight loss and constantly eating and drinking and asked if she had been tested, the consultant said no we haven't had a cause too..... I demanded a finger price test and bloods were at 39.9 and keytones were 4.8 we were immediately transfered to another hospital and within an hour insulin started..... The best of it is the neuro consultant she is under is also the paediatric diabetes consultant so God knows why it was missed.... Thank God for mums intuition or my princess might not be here now x
Chose first one but they urine dipped and then referred urgently x
Ignored on 3 occasions.. then told by a receptionist that my child wasn’t of urgency!! I begged.. cried.. I’d has no sleep the doctor did 4 finger pricks and told me she wasn’t diabetic.. two minutes after I left he rang me to say I think we should do a full blood test as I can see your very upset and worried... fasted her for 12 hours. Test done and two hours later we were rang and told to go straight to the hospital! ?? annoys me everyday the way that doctors surgery treated us!
My dd had no ‘classic’ symptoms but he did finger prick and dip urine to rule out type 1 and with that evidence we started on a month long journey until dx. X
Not finger prick but urine tested there n then and straight to hospital.. doctor phoned ward n told them we were on way ?
Altho my daughter had to wait 2 days from me ringing up as my doctor wouldn't do the finger prick test and had to wait for the diabetic nurse based in the doctors to be in
We were told it was a kidney or liver problem and sent to see a urologist. ?
Dd (age 9) presented with tiredness, persistent thrush and increased urination and thirst.
GP didn’t finger prick but prescribed antibiotics for urine infection. Receptionist rang the following day to say that tests for urine infection had come back clear and no further treatment was needed.
Dd continued to deteriorate, and I went back a few days later (to a different GP at the surgery) and demanded a finger prick test. Bloods were 23 and we went straight to hospital.
Hubby and I suspected Diabetes. I had phoned the GP in advance with my concerns as it was a Friday afternoon. They said to bring a urine sample down to them. We presented to our GP with classic symptoms and was sent home with urine ketone sticks and told to go to A&E if ketones appeared. We went to A&E to our nearest hospital which is over the county borders so when discharged we had to change teams.
I was specifically told ‘not diabetes’ and that it was ‘constipation’ and because mother has concerns to go for fasting blood tests ?Needless to say I didn’t wait for fasting bloods and walked into a&e and within 10 mins we were told yes your son has type 1 diabetes just from a finger prick. Fortunately mothers instinct meant the prevention of DKA but would hate to think what might of happened if I had trusted the GP ?
He was 3 at the time now 8
Took my 2 year old son to GP on a Thursday stating drinking excessively, had lost weight & wetting alot, was asked to bring water sample in on monday. By the Saturday before the Monday for water sample to be given he was white as a sheet & my gut knew he wasn't well at all so I rushed him to A & E where he was in DKA & diagnosis was made as type 1 within the hour. 4 days stay in hospital to be told if I'd left him any longer (sunday) he wouldn't be alive now! Complaint put into GP Surgery. was told due to his age it's uncommon for it to be diabetes & that's why finger pricking isn't done. ?
Wow what an overwhelming and quick response!
I’m not sure what to chose, they wouldn’t finger prick despite presentation but wanted a urine sample which in a 22 month old was exceptionally difficult to get. We eventually did and were referred immediately. I wish I had stood my ground and just got them to finger prick there and then
I suppose they took immediate action then...although a finger prick would be better
I was told she’s being a classic toddler and to stop letting her drink so much water.
I had to throw a right paddy and they offered to book us in to see the “diabetes doctor” when he’s next in (2 weeks time!!) I stormed out and took her to a&e she was only semi-conscious by the time I got there? xxx
As with many others, our DD presented with all the classic symptoms and I even asked if it could possibly be diabetes. GP said that at 13 months she was too young ?, she wasn’t vomiting so it obviously wasn’t diabetes... the next time we went back, she was vomiting but we were told it was a virus! I took her straight to the hospital who recognized what it was straight away - it still upsets me 5 years later - we nearly lost her! The hospital phoned the Dr’s surgery to complain and I know that they test now if any symptoms present.
My son was given a blood test that was sent to hospital for testing, then I had to ring to chase results as he was so poorly. He was later admitted with DKA ?
I brought my 2 year old daughter in 3 times to the gp with thrush weight loss and wetting, they told us to come back after the weekend, on our third visit, but we took her straight to the hospital as we new she wasn’t ok by the time we got there she was slipping in and out of consciousness with severe dka. Complaint to the drs doesn’t seem enough considering what could of happened if she was left the whole weekend. They wouldn’t test her as it was 5.30 and they stop doing blood tests at 5!
Took my son to the GP with the 4 Ts which he’d had for about a week (he never drinks so it was very out of character for him) - GP said it sounds like diabetes - did a urine dipstick and sent us straight to hospital. His blood sugar was 26 on admission - no ketones. I’m forever grateful to our GP but know now we were very lucky
I phoned 111 explained her symptoms they gave me 24 hour call back time, however in that time I called 999 who got us straight into out of hours docs who then finger pricked and sent us straight to the hospital. If I had waited for a doctor from 111 services my daughter wouldn't be here now, doctors at the hospital said if I had let her sleep that night she wouldn't have woken up ?
I took my boy who was 16months at tge time to gp on friday was told viral infection Went back following Tuesday to be told throat infection and was given antibiotics On Wednesday he didn't eat or drink but kept weeing and he was just sleepy I took him A&E and at 1st they tried to fob me off but i kept going and insisted on seeing a doctor I sat on the bed with my boy doctor stood behind and nurse was in front She said I'm just gonna do little blood test in his finger that number came back as 19 so she said I'm just gonna do his toe that was 21 They shot each a look she run out then about 6 nurses came running in saying all sorts of things about also sorts in him and im like whats wrong him him Later when i spoke to doctor he said tommy has type1 and was basically going into a coma when i bought him in I said to the doctor that i was actually gonna leave him until thursday but something made me take him when I did He was 16months old when diagnosed xxx
Same as when my son was diagnosed he was rushed into resus...Doctor at gp kept fobbing me off OVER THE PHONE..!! Something made me take him to a&e and I’m glad I did xx
stephanie74402 i just knew he wasnt right and i also knew it was more than throat infection Im so glad i listen to my gut and took him I find the doctors were just trying to fob me off as an over bearing panicked mum but no 1 knows your child like you do I left that doctors not long after as they kept getting his prescription wrong and they wouldn't give me what he needed xxx
My son kept weeing loads. I thought he had a bladder infection so I rang the Dr. They told me to get a urine sample first thing next morning and drop it off which I did. I received a call that lunchtime by the gp who asked how son was. I said ok but a bit tired from being up at night weeing. She said to bring him in straight after school or sooner if he felt unwell. Took him in after school. She did a finger prick test and then sent us straight to hospital children's ward. He was on lantus by 10pm that day. We felt shell shocked but caught it before dka fortunately.
Our GP tested urine then took full blood samples (rather than a finger prick)and sent to the hospital. Within 3 hours the hospital phoned to confirm diagnosis and get us to go in. When we got there staff had a room all ready for him.
We was referred to hospital children’s ward striaght away x
I was told by the diabetic gp it was a virus....because drinking 2.5 litres of water per day is normal for a 2 year old, also she was too young to be diabetic
A few trips to the GP in the weeks before diagnosis with what I now know are classic symptoms weight loss, headaches, very thirsty, peeing lots and thrush. Was put down to age and migraines. Phoned nhs 24 was as seen at local hospital, finger prick(reading HI), urine test and straight up to a&e, luckily no DKA, it was a bank holiday weekend and knew something was really wrong and couldn’t wait. Still don’t understand why a finger prick was never done at GP. Diagnosed 3 years ago
My daughter presented with thirst and the GP checked for ketones in her urine and then told us to go straight up to the hospital.
7 trips to gp, called a fussy mum as it was to rare to be that at 3 years old, told it was just constipation and i should give more fibre and if i didnt like it to go private...put in complaint with practice whole convo was denied by G.P so all was ignored, scripted lacolose and enima....rushed to hospital weeks later in full DKA and bm of 49 after child going into a full seizure xxx
My daughter was misdiagnosed at age 2/3 months resulted in DKA with sugars at 52. She see the same doctor and I rang them asking for my daughter to be tested as she had signs. 1st time she told me she wasn’t lethargic enough. Second time she told me she had a virus. She wasn’t interested what I had to say. The next day my beautiful daughter was fighting for her life for 5 days in intensive care. It takes a minute to check blood glucose ?
I took my daughter to the doctor's as she hadn't felt well for weeks. I explained she had lost weight and was drinking excessively and constantly going to the toilet all classic symptoms. She was prescribed antibiotics, when I stressed I wasn't happy she was booked in for a non urgent blood test a week later. The morning after the blood test they phoned and sent us straight to hospital where we found she was in DKA. I'm still angry that my fears weren't taken seriously and often wonder what would have happened if I hadn't pushed for the blood test.
What doctors are you with Julie? Xx
There's a certain doctor who I refuse to see now as they are very dismissive and on collecting Sophie's first prescription I was told they would honour it this time but they would change her test strips as it's not on their list, when I pointed out I didn't have an alternative machine for the strips they wanted me to use I was told to sort that out with the hospital. The hospital has had to write to them several times to insist I'm given what we need. I ended up having a meltdown in reception a few weeks ago after they refused to issue a prescription the consultant recently sent. The big issue I think is they don't have many if any other children with diabetes and have limited knowledge on it x
My son 17 was passing out and drinking loads for months. We had to force the doc to do a blood test
Thankfully our 75 year old GP recognised it and we did both urine and finger prick and he sent us straight to the hospital
Doc was brilliant it was almost 'leave now go straight to hospital, don't pass go!'
Wow I’m amazed at some of your awful experiences. I teach so was talking to the headteacher about Amy having a possible infection and she offered to let me finish early to take Amy to the GP. I phoned up at lunch they got her straight in. Even before we sat down the GP shot up and went to get a meter. Just by looking at her he knew she was diabetic, his first type 1 diagnosis. His meters just read Hi. Straight to a&e he phoned them to be ready for us as was quicker to drive than wait for an ambulance. She collapsed just as we walked in the hospital. Her blood sugar was 46mmols and ketones were 8.6. She was in a coma for the first 24 hours when they weren’t sure if she’d make it. The GP kept in touch each day to see how she was doing and even came in to see her. Even now he’s still amazing and has a little chat with Amy whenever we’re at the surgery.xx
Thats amazing your doctor is like that I wish all doctors were like that xx
I wish they all were too it’s so heartbreaking hearing some people’s awful stories of diagnosis. Xx
We presented with all the symptoms to be repeatedly told it was just a virus. On the 3rd visit in the same week I refused to move until they checked his bg. It was in the high 30s. Although the doctor couldn't apologise enough, it didn't make up for the tutting and dismissive attitude on that visit when I told the doctor I suspected type 1 diabetes and wanted him to be checked. Then when we got up to the hospital, his bg wan't checked again for almost 2 hours as the nurse we had told us he was too young to have T1 (he was 18 months) and in all her years nursing she had never seen a child that young with it!! It was a total shambles from beginning to end and something I still get very angry about ?
Urine test done while dd stayed over at her granny’s ( I worked nights) sugars high, nurse I worked with said to retest in am and if ketones present at all to head to a and e, retested around 9 diagnosed and transferred to a different hospital by 11, not in dka
It's heartbreaking reading all these posts as it seems alot of us have almost lost our children to DKA from lack of awareness from our doctors. I sincerely hope tracy10265 that all these comments are sent to every GP Surgery in the country & your survey will 100% give the GPS a kick up the backside & start becoming more aware. Good luck. xx
thanks! Im a lecturer (and nurse) and am hoping to write an article for a GP journal x
My son was 4 when diagnosed and being diabetic myself I recognised the symptoms. He was only 11.5 when I took him in to see the gp. He tested his blood and Urine and called ahead to children's ward while I drove him there. To be honest it was a pretty quick diagnosis.
No finger prick for us at GP's however he did do the urine dip test and it went straight to purple so was referred to a&e straight away, in fact the doctor phoned us a taxi to take us there. Sadly though just a month earlier I had called out a Gp to my son and he diagnosed a viral infection (even though it was the same symptoms) and prescribed antibiotics.
I'm not going answer as my friend had a bg monitor, myself, my mum and husband noticed the symptoms, tested her ourselves then went to gp with results.
I took my son to the gp concerned he was type 1. A urine test was done with a dipstick but he was drinking that much it was like water and too diluted to see anything. I insisted on a blood test so he was sent for a blood test the next day. The day after at 7:30am northern doctors called me to tell me to get him to hospital asap. Sugars were 35
Finger prick n urine dip test done by gp he called diabetic team at hospital straight away n we was sent straight up the hospital
We went to gp twice during the week to be told it was just a virus. Took him to a&e myself on the Sunday was in dka.
My son was told he had a bad virus and to go home and ride it out..... after being asked if my son had diabetes which obviously we said no they didn’t even check him even tho he questioned it?? Came home and an hour later I rang an ambulance car ambulance came out 1st done his blood pressure and his finger prick.....said I need to do that again we still didn’t think nothing of it until he asked if he was diabetic again we said no his blood sugars were 39.4 and upon arriving at hospital he was so close to a DKA scary stuff and we had no clue about diabetes never mind type 1!!! With us being in hospital 1/2 an hour he was diagnosed and really poorly!!! X x x
Went to gp for 8 weeks everytime said it was tonsillitus. 2 day hosp admission in that time too they said viral. On the morning of her been dx again been at gp said tonsiliitus given more antibiotics 1hr after that i was doing cpr on her on a shop floor. Admitted into hosp then told type1 bg 72.5. Ketones were 52 NOT 5.2 consultant said basically someone was watching over her
Took my 2 year old daughter with all symptoms nappy and bed wet through couple of times a night loads of drinking moody funny smell to breath (ketone) tummy pain loosing weight ect. And was told get a urine sample it's probably an infection or virus. I asked about diabetes but said let's start at the less invasive problems. 5 days later still no response from GP we took her to A&E finger prick taken 5 minutes later admitted with blood sugar levels of 26 was in hospital 5 days. More training needed 4 GP's as kids getting very sick before being diagnosed. Great work.x
Exactly! I tried for 2 days to get a gp appointment, then when we finally got in it was another 2 days before we got a diagnosis and he very almost drifted into a coma at the hospital. Terrifying how close we got, simply because of a lack of awareness and training.
Same the gp adked for a urine sample. I told him shes still in nappies a few months past. Ended up taking her to hospital. I was lucky as if i hsd left iy any longer god knows what would have happened.
I have not had any communication from my GP nothing not even a phone call to see how we are doing.
Had to force my doctor for a blood test. after weeks & weeks of me taking my son to our GP. He had a viral infection one after the other, losing weight, drinking loads etc. My sons dad is also T1 & Doctor was aware of this. I got my sons school involved because they noticed the weight loss. & only then would our GP test.
My sons was picked up extremely early stages due to taking him to the doctors with a suspected water infection. G.P finder pricked son, sent us to hospital that day. When I’m A&E son had a Asthma attack so that became priority. There was a massive question over weather he was type 1 early stages or if it was due to being on steroids for long periods at a time for his asthma. Eventually after a week 4 days in hospital and 24 hours clear of steroids coupled with his Hba1c test results back they started him on insulin. The rest is history, so unlike a lot of children we were very lucky as diagnoses was not a huge scary event for us like most.
Urine test for us then straight to a & e
And us. He was two at the time and we took him to the out of hours at the hospital. The dr thought he was fine but asked us to take him home, get him to pee on the potty and then bring the urine back. I don’t think for a second the dr thought anything was wrong and if it wasn’t for my mother telling me very wet nappies were a sign I diabetes I wouldn’t have thought to tell the dr and Ioan would have been sent home without any checks. The dr to panicked when he checked him and told my husband “I’m awful sorry your son has diabetic complications!” My husband totally panicked, thought he was dying and rushed home so that we could take him back in as an emergency.
My daughter had a virus, doc none fussed. Did urine sample, 'just in case'. which went in day after appointment. Emergency doc phoned following day demanding we took her is ASAP. Consultant put down as clinical neglect as we just missed DKA.
I took my son, who had just turned 10 months old to the gp twice in a week firstly as he had stopped eating, was really thirsty and very sleepy, diagnosed with a virus. Second time was because all the same symptoms plus constant vomiting, again diagnosed viral. Then that evening I called 111 with the same symptoms who sent me to out of hours who said “he’s poorly but not poorly enough to be admitted” diagnosed with a sick bug. 4am he started breathing very fast and deep and wouldn’t wake up so called 999 who sent an ambulance. The paramedic almost immediately recognized he was in DKA from the vomiting and the kussmaul breathing and tested his sugar which came back as 33 and immediately blue lighted us to hospital where he was found to have ketones of 7 and a ph level that was classed as severe. They were unable to get any cannulas into him so had to give him a central line into his jugular vein in his neck and an intraosseous line which is a huge needle drilled into his leg bone so the insulin and fluids could go through his bone marrow. He was in HDU for 4 days and pediatrics ward for 2 weeks. Without a doubt the most scary and traumatic day of my life.
Presented with classic symptoms and dka, sent to hospital in ambulance because it was recognised that he was seriously ill, but first to fingerprick was paramedic on the way. They had injected him with penicillin in case of an infection.
We didn't even see a doctor, the receptionist told us we were worried for no reason as we were first time parents and there was a sickness bug going around and as long as he was having wet nappies he was fine, we ignored her advice and went straight to the hospital and they said our 17 month old had a 50/50 chance of survival.
Omg hope you made a complaint about the receptionist x
They aint gonna listen as t1 aint on there list for kids plus they cant do nothing hospital is only place that will i took my t1 gp 5 times told them symtems instead i was reported social for not feeding my daughter i told them weight loss symtem not listened 2 am also t1 i was told am pareanoid even tho i new what she had
They can. They can finger prick and send to hospital. Many areas are very good
Tracy Corbett but question is is will they do it my gp wouldnt i tested my daughters sugar and urine myself then took her hospital as i had asked gp over 3 weeks to test refused also refisex to test her urine even tho i showed clear signs shes t1 as i am also
Gps tend 2 b trainned on t2 tho not t1 i find iv had gps refuse me insulin test strips ect but my gp i got now is gr8 worse thing i told gp what was wtong i took wee sample asked for it 2 b tested i ended up doing it myself cause after 3 weeks nothing changed
Our other child had a cough that we thought might be a chest infection. Our eldest had wet the bed twice and seeing as we were bringing one, we said we'd tag him onto the appointment. As soon as our amazing GP (who has since passed away) heard the symptoms he dived straight into urine test and finger prick. Our daughter was on the verge of a chest infection so he gave her an antibiotic anyway because he said we'd be busy. He sent us straight to the hospital and rang them to let them know we were on the way. As soon as we presented at the registration desk we were not allowed sit down, we were skipped to the top of the triage queue and straight in to resus. No dka. Just a dx of type 1.
Urine tested no finger prick sent straight to Hosp
I had googled symptoms rang Doctor he agreed he did a finger prick test and sent us straight to hospital. Our doctor was amazing x
Same here x
Non of the above
Presented with all classic symptoms and told weekly for over 6weeks it was viral infection
Later taken into hospital in DKA
So I suppose no immediate action? X
I dont know why that didnt show up before ???
My daughter was sent home with a pot for a stool sample and a form to go get a blood test when we wanted, no mention of diabetes, luckily my husband took her to get the blood test the same day, the next morning at 7.30 am a doctor came to the house to check she was ok as blood test showed her bg at 32 and her ketones at 2.6 x
My dd presented with classic symptoms and had urine dipped and then urgently referred
We presented with classic symptoms was tested and referred straight away but the gp we saw used to work in a diabetic clinic!
My daughter had been drinking lots and weeing lots so ask gp to check sample for water infection. Phone call to take her there immediately, finger prick and bloods taken within 30 mins phoned us ti take her straight to childrens ward as bed was waiting. Can not fault my gp recognised symptoms and always supplys test strips extra without any problem
Classic symptoms urine test done and sent to hospital urgently
I took my newly 2 year and back and forth to the GP for weeks. He told me she was making up being poorly. Needless to say she ended very poorly with DKA.
In the 3 weeks prior to diagnosis my dd has water infections and samples tested for infection. If tested for glucose as well it would’ve shown high levels. Luckily she was not dka so I think we should be pushing for testing when there is a urine sample available as well x
Voted the first one but our GP checked urine sample, called through to the paediatric consultant and sent us straight to hospital. They did finger prick check there x
We were the same as this we had urine checked and then sent straight to hospital xx
Went to doctors, knowing now all classic signs and extremely unwell. However Dr said in his opinion nothing more than a virus, reason we where there due thinking after 4 months this seriously must be more than a virus. Sent to hospital to do bloods, doctor said just in case. 7.30 that night Dr calls, hospital bed ready get into hospital immediately it will be quicker for me to drive than get an ambulance again his words. Before he called me the hospital had rang him and given results at his home and immediately inform parent child requires immediate medical attention. Never forgotten that call, how it all changed from there Admitted 47 and told we are lucky he is still alive and is seriously unwell and could still lose him. According to 111 service when seeking advice a week earlier told put cold flannel on back of neck he is ok if nothing else bit of a temperature. Useless!!!! My child would of died had I listened to either one. My son was like the walking dead.. 5yrs in now, how much has passed us by never thought we would cope, a year a diagnosis my other son diagnosed, both teens at the time
My dd lucky was going out for day with grandparents they dropped off a water sample thinking water sample doctor rung them to come back finger pricked was waiting Invar Park for me to say get straight there or he would call an ambulance if I couldn’t get there he’d made arrangements with hospital to see us straight away he was brilliant left not long after to become rescue dr on helecopters
My eldest 7 years ago had all the symptoms so she did wee sample and finger pricked him when she saw sugar in his urine. She was an old family doctor she was one of them doctors who could come out look at you and call you in. She also knew family history of T1. She has since retired so unsure what they are like now. Didn't go to go with my youngest went straight to hospital as it was evening and we knew the signs and tested ourselves x
Presented with non-classic symptoms and gp did finger stick and urine test as I'm type 1 and so is my Dad. Husband has hypothyroidism.
We presented classic symptoms and his urine was tested for glucose... referred the same day. Not sure if that is helpful or not x
Yes I think that's good x